How did you find helping others with the disease better understand their MS related problems?
This past year has brought with it some new challenges helping others to face MS diagnosis. I didn’t realise that my MS position could inspire others or that I was a good example to those that were facing MS for the first time. But it has made me feel like I have a positive new purpose, for the community, as well as caring for my family.
When my mobile rang last November, for example, I was petrified. It was “M”, someone I met 35 years ago. It turned out her older son, “C”, was experiencing some symptoms related to MS. I always knew “C” was a healthy young man, and a promising student, but he was dealing with symptoms that were very similar to those experienced by people with MS. I’m not an HCP but thought I could help.
I couldn’t miss the chance to have a chat with the boy and his parents. I wanted to help, as it’s hard to see people you care about worrying.
In these situations, using your own sense as well as being sensitive are important when facing a new chapter in your life, as well as helping others face new chapters in their own lives.
Living with MS, you can make the decision to be the patient, or the boss! You must be sure that you don't compromise, it’s all about the way you face the facts.
I communicated this to “C”, reassuring him that life could change, and making it clear that if he was diagnosed with MS, he must remain hopeful to overcome whatever appears to stand in the way. This is important to remember, so you can climb the mountain without fear.